The Outside World This Young Michigan Man Wouldn’t Stop Growing: The Reason Why Is Incredible Published 11 months ago on Mar 21, 2018 By Monica Huntington 1. Small Town Beginnings All new parents are concerned that their children are making enough progress in those early stages of growth. Are they eating enough? Are they sleeping enough? Are they happy? These are the kinds of questions that are constantly asked of our youth. Daily Mail For Michigan mother, Darci Moss Elliot, her newborn son, Broc Brown, was born at a healthy size – weighing just under eight pounds and measuring 22-inches-long. But as the young boy started to grow, it became apparent that he stood out. 2. Growing Up in the Blink of an Eye As an infant and young child, Broc Brown was a happy-go-lucky kid like the other children his age. Most little boys are inundated with remarks about going up to be big and strong. At an early age, however, it seemed apparent that Broc was already ahead of his peers. Barcroft TV Most young children experience significant growth spurts in their formative years, but Broc seemed to be growing at a much faster rate than his friends. As he approached kindergarten, a shocking observation was made that made them do a double-take. 3. Kindergarten Concerns While most parents feel that their children grow up in the blink of an eye, Broc Brown’s mother was baffled by her son’s rapid growth. By kindergarten, the young boy was already towering over his fellow kindergarteners at 5-foot 2-inches tall. The Sun Taking into consideration that the average height of five-year-old boys in America is a little under four feet, Broc Brown was way above his peers on the growth chart, but his family could not have guessed why. But they were about to find out. 4. Same Size as his Mother At this point, Broc Brown was about as tall as his mother, Darci. No longer able to ignore his extraordinary stature, she started to become very concerned. “When he was small, he couldn’t ride a bike,” his aunt Stacy Snyder said. The Sun “But when you’re trying to teach a 6-year-old who’s the same size as you, it’s hard. You can’t stabilize him.” As the questions about Broc’s growth flew, he and his family would soon find out the reason that would alter the course of their lives. 5. A Mother’s Love Apart from the usual hobbies that young children like to take part in, Broc Brown’s mother noticed that it was getting more difficult to perform other day-to-day aspects of caring for her young son due to his unusually rapid growth. Lifebuzz “When you have a five-year-old who has hurt themselves and they come running at you, you pick them up,” added Darci. “I would carry him around when he was half the size of me so I have a lot of back problems.” 6. Time to Call the Doctor Perhaps suspecting that this was something more than just an early growth spurt, mother Darci was understandably concerned. It was around that time that Broc Brown’s family took him to the doctor to find out what was going on with him. WILX Following many consultations, medical professionals ran some tests on the young boy. While Broc Brown’s mother was worried that something was out of the ordinary, his concerned family would soon get the medical results that would reveal an astonishing conclusion. 7. A Rare Diagnosis At the tender age of five, Broc Brown received a rare diagnosis that affects about one in every 15,000 people. After a tense wait, doctors finally determined that he had a hereditary condition called Sotos Syndrome, which is also referred to as “cerebral gigantism.” Daily Mail “There’s nothing that can stop him from growing – I don’t know if he will ever stop,” his mother Darci has asserted. While there was now an explanation for Brown’s condition, his family was still worried as it wasn’t initially clear what the future would hold in store for him. 8. A Gloomy Prognosis While dealing with the shock and worry about the boy’s unexpected diagnosis, Broc Brown’s family had to deal with additional devastation. The doctors told Broc’s mother that it was unlikely that her beloved only son would outlive his teenage years. Morning News USA It didn’t help the situation to learn that there is no standard treatment for Sotos syndrome and those with the genetic disorder are treated on a symptomatic basis. Despite the gloomy outlook, no one could have foreseen the unbelievable events that would happen. 9. What is Sotos Syndrome, Exactly? People with the rare genetic disorder Sotos syndrome are prone to excessive physical growth, particularly in the early years of life until the teenage years, just like Broc. Those with Sotos typically grow taller and faster than their siblings and peers. Daily Record While there are several other behavioral and medical issues associated with cerebral gigantism, most individuals affected by the condition generally measure in the average height range by adulthood. Broc Brown, however, stood out even among those with Sotos. He was different. 10. Treading the Teen Years While school-aged children commonly experience sudden growth spurts in the teenage years, Michigan boy Broc Brown continued to sprout up above his classmates even throughout middle school. Even in high school, his vertical orientation was clearly ahead of the crowd. Facebook Like any teenage boy, Broc liked to fish and spend time with his friends, but he was unmistakably unique. At the age of 11, Brock was already a staggering 6-feet-tall, and by age 14, he loomed over most of the rest of his class, measuring seven-feet-tall. Still, his upward growth wouldn’t stop there. 11. Another Hurdle While people who are born with Sotos syndrome are notedly taller than average, medical experts noted that Broc Brown was larger than most people with the genetic disorder. That pronouncement caused doctors and his family to become increasingly concerned about his health. Daily Mail Keeping in mind early estimates that Brown wouldn’t make it to adulthood, he continued growing at a steadily speedy pace well into his early teen years. When Brown was 14, his hopeful family again received distressing news. Now, doctors were saying it was possible that he wouldn’t make it past age 15. 12. Standing Tall in the Face of Adversity As is common with people who have Soto syndrome, Brown suffers from a strain on his heart, a curvature of the spine, ADHD, intermittent explosive disorder and some learning difficulties. In addition, he was born with only one kidney and therefore cannot take painkillers despite his chronic discomfort. The Sun “It kind of feels like a big tennis racket has gone through my back,” he has said about his relentless pain. “I do stuff to stop it hurting and it makes me feel like there’s a needle gone through it – it’s hard to deal with.” And that wasn’t all. 13. Comfort Tweaks In light of his circumstances, Broc Brown and his family have taken steps to try to make life more comfortable. Seeing that it wasn’t clear whether he’d ever stop growing, Brown employed the help of some special features to fit his frame. The Telegraph The ever-growing young man has a custom-made eight-foot bed and a special chair that comes at a hefty $1,000. His tailor-made bedroom furnishing particularly comes in handy when he sleeps up to 16 hours a day during growth spurts. In spite of his trying circumstances, Brown only had one simple wish as a teen. 14. ‘A Heart As Big As His Body’ Despite all of the obstacles and hardships that Broc has faced, his aunt Stacy Snyder says, he “takes on his condition day by day with a smile on his face.” His mother beamingly adds: “Overall he is a big softie, his heart is as big as his body.” cas.sk Amazingly, Broc has maintained a sunny attitude throughout everything. Those who know him have observed that not only is his height extraordinary, but so is his character. The humble young man has one heart-melting request: “I just wish the doctors could do something to help my pain.” But what does his everyday life look like? 15. Refusing to Stay Sedentary Due to his condition, everyday activities can be a challenge for Broc. Standing for long times, walking through doors and riding in cars can prove to be difficult talks. Sitting in restaurant booths, going to movies and fitting into small spaces are also not easy feats. The Sun Luckily, Broc has been able to do some traveling as of late. And although he never foresaw it coming, things would start to look up for Broc when he was part of an incredible experience that would make a huge impact on his young life. 16. Breaking Records The young Broc Brown was something of a well-known figure growing up in Jackson, Michigan. But the likable, easygoing teen from the small town of about 30,000 residents, in fact, went on to gain recognition on an international scale. In fact, he even broke an international record. The Sun Until 2015, Brown held the Guinness World Record title of the world’s tallest teenager until he turned 19 and became too old for the classification. Considering his doctors didn’t think he would make it past 15, his record breaking is all the more impressive. Brown succeeded fellow tall teen Kevin Bradford, but the Michigan native might even reach another record. 17. ‘Tallest Teens’ Despite the constant challenges, things took a particularly good turn when he participated in a TLC documentary called “Tallest Teens” in 2016. As the name indicates, the show highlighted the lives of a handful of American youth who top the growth chart. Daily Mail During that encounter, Broc Brown was finally able to do something he’d never done before: meet and interact with other people with Sotos syndrome. His mother explained that the experience was particularly positive for her son and allowed him to understand that he wasn’t alone. Still, there was another eye-opening event to come. 18. More Than Just the Tallest Teen As the years have passed, Broc Brown’s growth rate hasn’t slowed down. At the age of 19, he had reached the extraordinary height of 7-foot 8-inches, towering over his family members. And according to his mom, he is still growing at the rapid rate of six inches a year. Pinterest If he maintains that momentum, it is estimated that Brown could soon surpass the current record holder of the title of the world’s tallest man. While the public has marveled in awe of Brown, the incredible account of his journey is simply unbelievable. 19. A Brave Appearance Broc Brown’s encounter with television didn’t end with the TLC program. Also in 2016, the brave teen was featured on a special anti-bullying episode of The Maury Show. Broc and his mother, Darci, shared their story and delivered an encouraging message about putting a halt to bullying. YouTube After appearing on the show, the Maury team bestowed Broc with some thought-felt presents, including a new wheelchair and a surprising 10-year supply of Broc’s favorite fish sticks made by Gorton’s. The family was very grateful for the generous gesture, but they couldn’t have anticipated what else was in store for them after the appearance. 20. Incredible Aftermath Although he seems to be surrounded by a caring network of family and friends, Broc Brown’s participation on the TV shows catalyzed some amazing responses that have had a big impact on him, his family and those close to him. Facebook After the Maury feature aired, Brown was contacted by more people who wanted to share supportive messages. Moreso, Brown and family heard from others in Michigan who have Sotos syndrome or who have children with the condition. His family was overjoyed, but there was still a recurring obstacle they faced in light of the medical issues. 21. A Financial Hurdle While keeping up with the clothing needs of growing children is something most families face, Broc Brown’s ever-increasing stature meant that a sizeable budget was needed to keep him clothed and comfortable. Furthermore, due to his size, Broc was regularly in need of specially-designed apparel. The Sun In addition to the custom-made furniture that Broc Brown needed for his bedroom, he also needed some basic clothing staples. However, at 7-foot 8-inches and potentially getting taller, everyday items like shoes, shirts and shocks can be hard to find. 22. A Considerate Community Determined not to let the financial strain control the situation, Broc’s family decided to think outside of the box to meet the costs. The family had already set up The Support Page for Broc D Brown on Facebook, but they were shocked when the forum jumped to more than 15,000 likes after the TLC documentary. Facebook Meanwhile, the Michigan community wanted to pitch in and help the family out. Darci Moss Elliot has spoken with gratitude about the outpouring of goodwill that others have provided to the family. Various benefits for Broc have raked in some $10,400, but that wasn’t all. 23. An Overwhelming Outpouring Although they weren’t expecting the extent of the compassionate outpouring of thoughtful donations and supportive social media outreach, Broc Brown and his family were truly touched. Someone even donated tickets to a Detroit Pistons basketball and Broc had a great time meeting some of the players. Click on Detroit All of the public exposure produced an incredible response that stunned Broc and family, but unfortunately, the family still faced somewhat of a struggle. According to his mom, the funds “didn’t last long, we had a lot of outfits but within a year he was out of them and it was time to do it all again.” 24. A Grateful Guy While the family was more than appreciative for all of the outreach, they understandably were still concerned about the future. While some people may take for granted the ability to readily go out and buy a simple T-shirt, that isn’t the case for Broc, who gratefully revels at every new wardrobe item. New.com.au While specialty socks for his size-28 feet can run at $20 per pair, shoes can be even more of a challenge when it comes to size and pain-relieving comfort. Boots and sandals aren’t found in his closet and at any given time he might only have one pair of shoes. Still, his aunt Stacy Snyder says he amazingly doesn’t complain. 25. A Revolutionary Technology In addition to the help of fundraisers, a revolutionary new technology has finally presented a relatively affordable footwear option for Broc. The California-based company Feetz presented its services that can use 3-D printing to make shoes at about half the price, or less, than regular custom fits. WLNS When Broc received his first pair of the custom kicks, he was justifiably ecstatic. “Heck, I don’t like them. I love them. Thank you,” he exclaimed. While such developments are surely uplifting, there was a medical update yet to come that would completely catch Broc and family off guard. 26. Another First Given that confined spaces present a challenge for him, Broc and his mother recently took the approximately 1,000-mile flight from their home to Arkansas to visit a specialist who would deliver some of the most surprising news they’d heard in a long time! Pinterest Among his list of new experience, Broc could finally check off seeing a Sotos specialist when he met Dr. Bradley Schaefer of Arkansas Children’s Hospital. Although the chief geneticist said there was little in the way of relieving Broc’s chronic spine pain, he relayed a priceless prognosis. 27. Surprising News from a Specialist Although doctors had initially estimated that Broc Brown would have a short life, Dr. Schaefer gave him some of the best news of his life. Already having proving doctors wrong about his life expectancy, Broc’s prognosis was revisited by Dr. Schaefer who determined that he was out of life-threatening danger. Facebook “Broc is easily the tallest man I have ever seen,” said Dr. Schaefer “Unfortunately, he will always have to deal with some form of pain, but I believe that he will now have a regular lifespan.” Now expected to live for many decades to come, Broc had a heart-melting response. 28. The Best Thing As usual, the ever-optimistic Broc Brown was able to look past the less delightful details and focus on the good news. “It’s the best thing I could have heard,” said an exuberant Brown. “I’m so happy that I will live for a long time.” Daily Mail While it is common for people with Sotos syndrome to maintain a peak height in adulthood, it is not yet clear whether that will be the case for Broc. And while he might not be able to live alone, he and his family have the most heartfelt hopes for his future that will certainly bring a tear to your eye. 29. Looking to the Future If Broc keeps growing at his average rate so-far of six inches a year, by the age of 21, he is expected to surpass the height of the world’s current tallest man – Turkey’s Sultan Kosen, who measures in at a towering 8-feet 2-inches. Guinness World Records Despite his pain and difficult childhood, Brown has amazed everyone with his triumphant achievements, but he’s not stopping there. Not allowing himself to be perturbed by his condition, the determined young man says he already has future aspiration in mind. 30. A Huge Inspiration “I hopefully want to work for a sporting goods store so something like that, a cashier or something,” Brown has admirably stated. “I just want to have my own job.” Along with that, Brown and his mother are looking forward to spending a long future together. Daily Mail For her part, his mother, Darci, doesn’t want to push him to do anything outside of his comfort zone. “I just hope he has a good life and is happy with everything he ever does,” the loving mother wishes for her beloved son. If you liked this article, don’t’ forget to SHARE it with friends! Sources: Click on Detroit, Daily Mail UP NEXT These Hilarious Cats Will Make You Laugh Out Loud... 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